On the remote Aboriginal and Torres Strait Islander community of Groote Eylandt, Northern Territory, local Health Centre professionals have had success by working respectfully with the local Anindilyakwa people, empowering them to express their end-of-life wishes by outlining the various aspects of an Advance Care Plan in a culturally safe and appropriate way. With the endorsement of Elders, many community members have completed an individual Advanced Care Plan.
Filmed on Groote Eylandt, the Discussing Choices – Indigenous Advance Care Plans – A Learning Resource acts as a culturally safe and practical case study for professional health, Aboriginal and community workers on ‘how to’ support and complete Advance Care Plans for end-of-life care in Indigenous communities. It also outlines the importance and benefits of an Advance Care Plan for Aboriginal and Torres Strait Islander people, such as the importance of kinship, country, passing on culture to future generations and keeping families strong.
Palliative Care Northern Territory (PCNT) President (2021), Jonathan Dodson-Jauncey, guides viewers through the video, outlining the importance and benefits of an Advance Care Plan for Aboriginal and Torres Strait Islander people
Key learnings from the video
• Solid partnerships with longevity
• Local needs are what drive processes.
• Community initiatives and encourages conversation
• Ensuring clear communication with supporting explanation
• Clear differentiation of choices using different scenarios
• Active use of interpreters to support families
• Ensuring correct family members are informed of end-life-wishes
• Allowing for and supporting changes and flexibility
• Ensuring the right people have copies of the Advance Care Plan